When Celine Dion revealed exactly how a rare disease has affected her singing voice, she broke down in tears.
“It’s really hard for me to show you this,” said Dion, 56, as she broke the fourth wall in her groundbreaking documentary, Me: Celine Dion.
Directed by Academy Award nominee Irene Taylor, the feature-length film will give fans of the singer rare access to life after she was diagnosed with the rare stiff-person syndrome (SPS).
It affects only one or two people in every million and is a progressive autoimmune neurological disorder that causes muscle stiffness and pain spasms, and usually starts in the body before developing in the hands and feet.
“Before I got SPS, my voice was the conductor of my life. I followed it,” he said in a clip from the film.
“‘You lead the way and I will follow you.’ And I’m fine because I’m having fun When your voice makes you happy, you’re the best.
Dion said of his voice, “‘You can be the leader, my ego is not big. If you want to take it, I don’t care. I’m having fun here.'”
With that description of how important her voice was to her, Dion went on to describe the physical pain of the disease.
“Sometimes when I try to breathe my lungs are fine. But what’s in front of my lungs gets stiff,” he said, as he tried to sing but struggled to hit a note or project his voice.
“There was a time when I had to go to the studio and I knew they wanted Celine Dion?” the singer said of the expectations she faced trying to still deliver her good voice.
He added: “But who is Celine Dion? She sings at the highest pitch. She’s the best.”
The singer also described her talent while crying: “I think it’s great. I think I have something amazing.”
The documentary premiered on Prime Video on June 25 and flies past Dion’s most impressive successes and personal life to focus on her battle to return to the stage.
One face-to-face scene even shows Dion having a “crisis”, where his legs stiffen and then his entire body stiffens. Her health team was on the brink of calling 911 until the drugs they gave her kicked in.
Dion explained how she hardly leaves her Las Vegas home anymore and wants to make a documentary because she’s always been an “open book” with her fans and doesn’t want to “lye to you.”
The Quebec-born singer is one of the most successful music artists of all time and has sold more than 250 million albums worldwide.
Her number one hits include “The Power of Love,” “It’s All Back to Me Now,” “My Heart Will Go On,” and “Because You Love Me.”
He has won five Grammy Awards, two Academy Awards, seven American Music Awards and an incredible 43 Félix Awards – Quebec music awards.
In 2004, the World Music Awards awarded Diamond status as the best-selling female artist of all time and in 2016 the Billboard Music Awards awarded her the Lifetime Achievement Icon Award.
If that’s not enough, his Las Vegas residences remain two of the highest-grossing of all time.
Two years ago she revealed that her condition caused muscle spasms that affected her ability to sing and walk.
“While we’re still learning about this rare condition, we now know it’s what’s causing all the spasms I’m having,” he said in a video posted to Instagram. “Unfortunately, the spasms affect every aspect of my daily life, sometimes causing difficulty when walking and not allowing me to use my vocal cords to sing like I used to.”
Me: Celine Dion will be available on Prime Video on June 25th.
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Newsweek is committed to challenging conventional wisdom and finding connections in the search for a common field.